Patient Engagement
GPC Research Patient Advisory Council Activities and Payment Model
Greater Plains Collaborative Rapid Community and Patient Engagement (GPC Rapid PACE) Resource: The GPC Rapid Community and Engagement (Rapid PACE) Resource consists of trained patient research advocates from diverse communities across all participating GPC sites. The term “patient research advocate” means these individuals have experience as patients, caregivers and community leaders. They bring their patient experiences and insights into the research process. They are familiar with research approaches and methods and value research that advances evidence-based medicine to improve people’s health. They understand research advocacy is not about patient care today – it’s about supporting research to improve care for patients in the future. Their lived experience and network with other patients and caregivers provide unique perspectives and insights to better inform research and collaborate with researchers. These individuals are members of GPC’s Patient Advisory Council (PAC).This GPC RAPID PACE DOCUMENT provides additional information regarding the resource.
Interested in participating in a Rapid PACE session? Please fill out the intake form below detailing your grant submission or research project and your purpose for requesting a session. A member of the GPC Engagement Team will reach out to set up a consultation meeting.
Overview:
Each of the 14 GPC sites has a patient research partner representative to form the GPC Patient Advisory Council (PAC). These patients are familiar with research approaches and methods and value research that advances evidence-based medicine to improve people’s health. They bring their patient experiences and insights into the research process through RAPID PACE . The RAPID PACE panel is a critical and effective channel for PAC to give feedback on research ideas and to suggest ways to make research more patient-friendly.
PAC member job description:
- Join monthly teleconferences, including GPC PAC meetings and GPC Global calls, both of which are one-hour long.
- Join RAPID PACE panel calls (one-hour long), scheduled as researchers request.
- Share opinion, react to ideas, be willing to hear and learn from others and participate.
- Review ccasion engagement related materials. This will involve perhaps 30 minutes of “homework” for an upcoming call.
- Attendance to the GPC annual Learning Engagement Conference (LEC) is highly recommended and desired.
- GPC Engagement Team will communicate and send materials by email. Telephone number and email address shared with Engagement Team for communication purposes will not be released without patients’ consent. PAC members must have a home computer, tablet etc., an email address and a connection to the Internet.
PAC compensation:
To appreciate patient research partners’ time and effort, meeting attendance will be paid $60 for each one-hour call or $100 per day for LEC participation.
GPC Prime Institution, The Curators of the University of Missouri, has provided the infrastructure to support a unique model for instant and accurate payment for the patient advisors. During the onboarding process, each advisor will receive a packet consisting of a simplified Consultant Agreement (approved by the University of Missouri General Council), and relevant materials to open a DirectCheck account with the Commerce Bank. At the end of each month, meeting attendance of advisors is reported by the GPC Engagement Team to GPC Project Management Office (PMO). The attendance records are subsequently confirmed by the advisors through secured and unique REDCap surveys, which serve as the accounting documentation for the payments. Upon receiving the advisor confirmations, GPC PMO credits the debit cards associated with each member with the appropriate amounts. The funds are wired to each advisor’s debit card and available immediately. Travel reimbursements are also issued through this channel and excluded on Form 1099.
This process is currently exclusive for GPC advisors. It minimizes the paperwork burden on GPC patient advisors and provides instant payments for their research participation.
Patient Engagement Videos The following videos were produced by PCORI in partnership with Health Affairs to show ways patients and practitioners are incorporating patient engagement in heath care decisions.
Engaging Patients in Healthcare Decisions
Patient Engagement Resources: Care maps and clinical trials
Overcoming Patient Engagement Barriers: Urban and Rural Success Stories
PowerPoint Presentations The following presentations are intended to give patients/stakeholders a better understanding of PCORnet® and the GPC, and our overall mission in Clinical Research.
Blog Articles The following articles from PCORI’s Patient Engagement Blogs are intended to show patients/stakeholders why patient and stakeholder engagement is so important to clinical trials.
- “What the Research Community Can Learn from Patient and Stakeholder Engagement”
- “What Our Workshop Participants Are Teaching Us about Patient-Centered Research”
- “In the Field With PCORnet: The Greater Plains Collaborative Kickoff”
Graphic Recordings These collections of graphic recordings were created at the 2014 Learning Engagement Kickoff and the 2015 Learning Engagement Conference. They show the mission of the GPC and its goals regarding patient engagement and clinical data research.
LEK 2014
