GPC CRN Collaboration
The GPC Front Porch Resource Guide is a compilation of key GPC resources and will provide a one-stop shop for investigators. The Resource Guide is aimed to help the investigator determine the types of services that they need in their engagement with GPC. Please click this link Front Porch Resource Guide for the descriptive version.
A list of GPC collaboration activities includes, but is not limited to, the following:
- Development and validation of computable phenotypes (algorithms to identify patients)
- Prep to Research activities such as obtaining counts for feasibility or sample size estimates
- Research on de-identified and limited electronic health record data
- Identification of patients across the Greater Plains Collaborative CDRN
- Contact of potential study subjects through phone, email, and other modalities
- Survey Research
- Observational research
- Pragmatic clinical research
- Hypothesis Generation
- Stakeholder Engagement (Patients/Families, Clinicians, Clinics, etc)
- Health Information Technology support for patient-facing studies
| Distributed Data | Mechanism to submit request | Who is responsible for query development? | How are results accessed? | Timeline | IRB approval |
|---|---|---|---|---|---|
|
Aggregate Query |
Investigator in collaboration with the informatics/analyst at local site, GPC central or PCORnet query fulfillment center. Piloting at a site and validation is required. |
REDCap or CSV |
2-3 weeks without query optimization |
Not required |
|
|
De-identified |
Same as above |
REDCap |
Same as above |
Same as above |
|
|
Limited < 150 |
Same as above |
REDCap |
Same as above |
Required – needs to be uploaded in request forms |
|
|
Limited >= 150 |
Same as above |
REDCap or SFTP |
Same as above |
Required – needs to be uploaded in request forms |
|
|
Access to GROUSE data for investigator to conduct analyses |
Queries developed and confirmed with a GPC GROUSE expert |
Within GROUSE environment |
2 weeks upon DROC approval |
Required – needs to be uploaded in request forms |
|
|
GPC team conducts analyses on GROUSE
|
Queries developed and confirmed, results analyzed by a GPC GROUSE expert |
Within GROUSE environment |
2-3 weeks |
Required – needs to be uploaded in request forms |
Note: Aggregated queries can be provided with no costs; costs of other services will be determined during consultation.
For more detailed information on GPC Collaboration pricing as well as letters of support, please refer to the following presentation, which also includes specific rates associated with the various activities as well as examples of cost breakdown for various types of collaboration: