Study Name: Neuroendocrine Tumors – Patient Reported Outcomes 

Study Acronym:NET-PRO

Study PI(s):Michael O’Rorke, PhD,University of Iowa

Purpose: The NET-PRO study (Neuroendocrine Tumors – Patient-Reported Outcomes) is designed to address the following patient-identified research gaps:

• • To describe the symptoms and quality of life with different NET treatments.
  • To learn what patient and tumor factors influence the order that treatments are given.
  • To learn whether treatment order affects quality of life, symptoms and survival.
  • To help others conduct research on NETs and other rare diseases.

Study Sponsor: Patient-Centered Outcomes Research Institute (PCORI)

GPC Partners: 

1. 1. Allina Health 
   2. University of Utah (UUTAH)
   3. University of Iowa (UIOWA)
   4. University of Texas SouthWestern Medical Center (UTSWMC)
   5. Kansas University Medical Center (KUMC)
   6. Medical College of Wisconsin (MCW)