2021 Learning Engagement Conference

Each year the Greater Plains Collaborative Clinical Research Network holds a gathering of patients, patient advocates and caregivers, along with the academic leaders from each GPC site.  This year, the event will be held virtually.  This is a great opportunity for patients and other non-academics to learn about PCORnet, the CRN program, and the GPC in general. GPC representatives meet with one another for discussion on current GPC activities and future goals. We learned during previous Learning Engagement events that attendees who subsequently became involved in other GPC activities and governance more fully understood what PCORnet is all about, which is critical for full participation and contribution. 

2021 Learning Engagement Conference Registration Form

 When: This year we are scheduling our event virtually: 

• Thursday, October 21st, 2021
  • Optional meeting – GPC Introduction 8am - 9pm 
  • Meeting Session 9am – 1pm 
• Tuesday, October 26th, 2021 
  • Meeting will last from 9am – 11:00 am

Where: Virtual via Zoom links in the agenda

What: Final agenda and notes

• Current Agendas:
  • Thursday, October 21st

          8:00 am – 8:50 am           GPC Orientation

• Kim Kimminau, PhD （University of Missouri） Presentation
• Russ Waitman, PhD (University of Missouri) Presentation

          9:00 am – 9:50 am           Welcome            

• Russ Waitman, PhD (University of Missouri): PCORnet Introduction Presentation
• Claudia Grossman, PhD (PCORI): PCORI and PCORnet Phase 3 Presentation

  10:00 am – 10:50 am      Breakout Sessions          

• Patient Engagement – Review and Q & A with the STAR CRN Engagement Team

          Lead Facilitators:  Alecia Malin Fair, DrPH and Jabári Ichimura, B.S. (Vanderbilt University Medical Center) Presentation pt1 & pt2, Notes               *

• IRB – Transferring Active Studies to a New SIRB

          Lead Facilitator: Sarah Mumford (University of Utah) Notes            

• Dev/PM/PI – Phase 3.0 New Work (NLP, Tumor Table, Datavant, Death Indicator/SSDMF Snowflake/GROUSE)

          Lead Facilitator:  Russ Waitman, PhD (University of Missouri) Notes

          11:00 am – 11:50 am      Breakout Sessions

• Patient Engagement – University of Utah on their Inclusion of the GPC’s Rapid PACE Model for Pilot Study Applicants 

          Lead Facilitator:  Louisa A. Stark, PhD (University of Utah) Notes  

• IRB – HRP Review Process Flow Presentation

          Lead Facilitator: Sarah Mumford (University of Utah) Notes       

• Dev/PM – GROUSE Architecture Presentation Notes

          Lead Facilitator:  Xing Song, PhD (University of Missouri) Presentation & Notes

• PI – Proposing Priority Areas for GPC Competitiveness (e.g., Data Domain expansion, Linkages, EHR-REDCap integration) Relative to Phase 3.0 and Coordinating Center Scopes 2 and 3

          Lead Facilitator:  Russ Waitman, PhD (University of Missouri) Presentation & Notes

         12:00 pm – 12:50 pm     Virtual Poster Walk – GPC Projects and Proposals

• Topic: PCORnet Engagement in Phase 3.0

          Presenter: Neely A. Williams, M.Div., Ed.D (c) (Vanderbilt University) Presentation  

• Topic: Video-based Caring Contacts for veteran suicide prevention

          Presenter: Jeffrey Tabares, PhD (The Ohio State University) Presentation

• Topic: Deploying CDMV6 Data Model Extensions for Health Disparities Research

          Presenters: Carol R. Geary PhD RN, James Svoboda MS, James R. Campbell MD (University of Nebraska Medical Center) Presentation

• Topic: The utility of nursing notes versus discharge summaries among patients with heart failure to predict 30-day rehospitalization: a pilot study

          Presenter: Youjeong Kang, PhD, MPH, RN (University of Utah) Presentation

         12:50 pm – 1:00 pm        Closing Statement

         Lead Facilitator:  Russ Waitman, PhD (University of Missouri)

• Tuesday, October 26th
• 9:00 am – 9:10 am           Welcome

          Lead Facilitator: Russ Waitman, PhD (University of Missouri)

• 9:10 am – 9:55 am           Breakout Sessions

• Patient Engagement – Widening Our Engagement Team to Include Clinicians, Payers, Public Health and Other Non-Patient Stakeholders

          Lead Facilitators:  Kim Kimminau, PhD and Jeff Ordway (University of Missouri) Notes

• PM/DEV - GPC Front Porch Topics:  GPC PM/DEV Processes and Improvements Presentation

          Lead Facilitators:  Brian M. Gryzlak, MSW, MA (University of Iowa) and Deandra Cassone, PhD (University of Missouri) Presentation

• PI - Priority capabilities/decisions to drive GPC/PCORnet adoption/competitiveness that scales relative to sites’ aspirations

         Lead Facilitator:  Russ Waitman, PhD (University of Missouri) Presentation & Notes

• 10:00 am – 10:50 am      Breakout Sessions

• Patient Engagement – Discussion on the Social Determinates of Health

          Lead Facilitator: Joyce (Joy) E. Balls-Berry, PhD, MPE (Washington University) Notes

• PM/DEV - GPC Front Porch Topics:  Stakeholder Resources and Research Development Support

          Lead Facilitators: Brian M. Gryzlak, MSW, MA (University of Iowa) and Deandra Cassone, PhD (University of Missouri) Presentation

• PI - Cultivating investigators/proposals: building upon existing projects, new business development for priority areas

          Lead Facilitator:  Russ Waitman, PhD (University of Missouri) Presentation & Notes

• 10:50 am – 11:00 am      Closing Statement

          Lead Facilitator:  Russ Waitman, PhD (University of Missouri)

Requested Attendees: We are requesting the following attendees from each site, but sites are welcome to attend:

• Site PI
• Patient Advisor
• Patient Engagement Officer
• IRB Representative
• Dev Team Member
• Project Manager

Please continue to check back for the most up-to-date information on the 2021 Learning Engagement Conference.  We look forward to seeing you all at the meeting.