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2022 Learning Engagement Conference

2022 Learning Engagement Conference

October 4th and 6th, 2022

Agendas

2022 Learning Engagement Conference (Virtual), Agenda- October 4th, 2022

2022 Learning Engagement Conference (Virtual), Agenda- October 6th, 2022

October 4th, 2022

  • GPC Orientation
  •  Welcome – Russ Waitman (University of Missouri) and Jim McClay (University of Missouri) with Keynote Speaker Claudia Grossman (PCORI)
  • Breakout Session-1
    • Patient and Stakeholder Engagement – Social Determinants of Health
      • Lead Facilitators:  Kim Kimminau (University of Missouri) and Jeff Ordway (University of Missouri)
      • Joyce Balls Berry – Presentation
      • Notes
    • IRB – Working Session: IRB representatives will work on developing a decision support tool to assist investigators and IRBs with determining if an SIRB process is needed and what, if any, data sharing agreements may be needed for early-stage projects.
      • Lead Facilitator: Sarah Mumford (University of Utah)
      • Notes
    • Dev/PM/PI – Phase 3.0 Status Update 
  • Breakout Session-2
    • Patient/Stakeholders/PIs – Commercial Use Data Sharing
      • Lead Facilitators:  Deandra Cassone (University of Missouri), Xiaofan Niu (University of Missouri) and Russ Waitman (University of Missouri)
      • Presentation
      • Notes
    • IRB – Working Session:
      • Lead Facilitator: Sarah Mumford (University of Utah)
      • Notes
    • Dev/PM – Data Quality and GROUSE Update 
      • Lead Facilitator:  Xing Song (University of Missouri) and Christine Spinka (University of Missouri)
      • Presentation
      • Notes
  • RAPID PACE Session – A demonstration of patient and stakeholder input that strengthens and enriches GPC research 
    • Lead Facilitators:  Kim Kimminau (University of Missouri) and Jeff Ordway (University of Missouri)
    • Research Presenter:  Xing Song (University of Missouri)
    • Presentation
    • Notes

October 6, 2022

Virtual Poster Walk – GPC Projects and Proposals 10-minute presentation with 5-minute questions.

  • Topic: Improving CLABSI Risk Assessment Among Children with Cancer and Those Undergoing Hematopoietic Stem Cell Transplant
  • Topic: Pregnancy Outcomes in Women with Bleeding Disorder
  • Topic: Neurologist Care for Amyotrophic Lateral Sclerosis - A utilization and outcome study leveraging GROUSE

Breakout Sessions

  • Patient and Stakeholder Engagement – PAC and PEO Engagement and plans for SAC Engagement at Local GPC Sites
    • Lead Facilitator: Kim Kimminau (University of Missouri) and Jeff Ordway (University of Missouri)
    • Notes
  • PI/PM/DEV – VA/Axiom Linkage Update
    • Lead Facilitator:  Jacob Kean (University of Utah) and Xing Song (University of Missouri)
    • Presentation
    • Notes